Abstract
Ethical principles of community-based participatory research (CBPR)-specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability-stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 77-87 |
| Number of pages | 11 |
| Journal | Journal of Health Care for the Poor and Underserved |
| Volume | 23 |
| Issue number | 4 SUPPL. |
| DOIs | |
| State | Published - Nov 1 2012 |
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Keywords
- African Americans
- Cancer disparities
- Colorectal cancer
- Community health workers
- Community-based participatory research
- Ethics
- Translational research
ASJC Scopus subject areas
- Public Health, Environmental and Occupational Health
Cite this
Community health workers support community-based participatory research ethics : Lessons learned along the research-to-practice-to-community continuum. / Smith, Selina A.; Blumenthal, Daniel S.
In: Journal of Health Care for the Poor and Underserved, Vol. 23, No. 4 SUPPL., 01.11.2012, p. 77-87.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Community health workers support community-based participatory research ethics
T2 - Lessons learned along the research-to-practice-to-community continuum
AU - Smith, Selina A.
AU - Blumenthal, Daniel S.
PY - 2012/11/1
Y1 - 2012/11/1
N2 - Ethical principles of community-based participatory research (CBPR)-specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability-stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR.
AB - Ethical principles of community-based participatory research (CBPR)-specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability-stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR.
KW - African Americans
KW - Cancer disparities
KW - Colorectal cancer
KW - Community health workers
KW - Community-based participatory research
KW - Ethics
KW - Translational research
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UR - http://www.scopus.com/inward/citedby.url?scp=84872231657&partnerID=8YFLogxK
U2 - 10.1353/hpu.2012.0156
DO - 10.1353/hpu.2012.0156
M3 - Article
VL - 23
SP - 77
EP - 87
JO - Journal of Health Care for the Poor and Underserved
JF - Journal of Health Care for the Poor and Underserved
SN - 1049-2089
IS - 4 SUPPL.
ER -