Community health workers support community-based participatory research ethics: Lessons learned along the research-to-practice-to-community continuum

Selina A. Smith, Daniel S. Blumenthal

Research output: Contribution to journalArticle

19 Citations (Scopus)

Abstract

Ethical principles of community-based participatory research (CBPR)-specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability-stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR.

Original languageEnglish (US)
Pages (from-to)77-87
Number of pages11
JournalJournal of Health Care for the Poor and Underserved
Volume23
Issue number4 SUPPL.
DOIs
StatePublished - Nov 1 2012

Fingerprint

Community-Based Participatory Research
Research Ethics
Research
United States Public Health Service
Vulnerable Populations
Syphilis
History
Research Personnel
Learning
Neoplasms

Keywords

  • African Americans
  • Cancer disparities
  • Colorectal cancer
  • Community health workers
  • Community-based participatory research
  • Ethics
  • Translational research

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

Cite this

Community health workers support community-based participatory research ethics : Lessons learned along the research-to-practice-to-community continuum. / Smith, Selina A.; Blumenthal, Daniel S.

In: Journal of Health Care for the Poor and Underserved, Vol. 23, No. 4 SUPPL., 01.11.2012, p. 77-87.

Research output: Contribution to journalArticle

@article{fd8c4b83049b4c5792661f0b17c61676,
title = "Community health workers support community-based participatory research ethics: Lessons learned along the research-to-practice-to-community continuum",
abstract = "Ethical principles of community-based participatory research (CBPR)-specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability-stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR.",
keywords = "African Americans, Cancer disparities, Colorectal cancer, Community health workers, Community-based participatory research, Ethics, Translational research",
author = "Smith, {Selina A.} and Blumenthal, {Daniel S.}",
year = "2012",
month = "11",
day = "1",
doi = "10.1353/hpu.2012.0156",
language = "English (US)",
volume = "23",
pages = "77--87",
journal = "Journal of Health Care for the Poor and Underserved",
issn = "1049-2089",
publisher = "Johns Hopkins University Press",
number = "4 SUPPL.",

}

TY - JOUR

T1 - Community health workers support community-based participatory research ethics

T2 - Lessons learned along the research-to-practice-to-community continuum

AU - Smith, Selina A.

AU - Blumenthal, Daniel S.

PY - 2012/11/1

Y1 - 2012/11/1

N2 - Ethical principles of community-based participatory research (CBPR)-specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability-stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR.

AB - Ethical principles of community-based participatory research (CBPR)-specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability-stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR.

KW - African Americans

KW - Cancer disparities

KW - Colorectal cancer

KW - Community health workers

KW - Community-based participatory research

KW - Ethics

KW - Translational research

UR - http://www.scopus.com/inward/record.url?scp=84872231657&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84872231657&partnerID=8YFLogxK

U2 - 10.1353/hpu.2012.0156

DO - 10.1353/hpu.2012.0156

M3 - Article

C2 - 23124502

AN - SCOPUS:84872231657

VL - 23

SP - 77

EP - 87

JO - Journal of Health Care for the Poor and Underserved

JF - Journal of Health Care for the Poor and Underserved

SN - 1049-2089

IS - 4 SUPPL.

ER -