Conducting Behavioral Intervention Research in Rural Communities:

Barriers and Strategies to Recruiting and Retaining Heart Failure Patients in Studies

Lufei Young, Susan Barnason, Van Do

Research output: Contribution to journalArticle

Abstract

Background: Heart failure is a major public health problem, and self-management is the primary approach to control the progression of heart failure. The low research participation rate among rural patients hinders the generation of new evidence for improving self-management in rural heart failure patients.
Purpose: The purpose of this study is to identify the barriers and strategies in
the recruitment and retention of rural heart failure patients in behavioral intervention programs to promote self-management adherence.
Method: This is a descriptive study using data generated from a randomized
controlled trial.
Results: Eleven common barriers were identified such as the inability to perceive
the benefits of the study, the burden of managing multiple comorbidities, and the lack of transportation to appointments. Possible gateways to improve recruitment and retention include using recruiters from the local community and promoting provider engagement with research activities. Multiple challenges inhibited rural heart failure patients from participating in and completing the behavioral intervention study.
Conclusion and implications: Anticipation of those barriers, and identifying
strategies to remove those barriers, could contribute to an improvement in the rural patients’ participation and completion rates, leading to the generation of new evidence and better generalizability of the evidence.
Original languageEnglish (US)
Pages (from-to)1-8
Number of pages8
JournalGSTF: Journal of Nursing and Health Care (JNHC)
Volume1
Issue number1
StatePublished - 2010

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Behavioral Research
Rural Population
Heart Failure
Self Care
Patient Participation
Research
Comorbidity
Appointments and Schedules
Public Health

Keywords

  • Research recruitment
  • Research retention
  • Behavioral research
  • Heart failure
  • Self-management
  • Rural Health

Cite this

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title = "Conducting Behavioral Intervention Research in Rural Communities:: Barriers and Strategies to Recruiting and Retaining Heart Failure Patients in Studies",
abstract = "Background: Heart failure is a major public health problem, and self-management is the primary approach to control the progression of heart failure. The low research participation rate among rural patients hinders the generation of new evidence for improving self-management in rural heart failure patients.Purpose: The purpose of this study is to identify the barriers and strategies inthe recruitment and retention of rural heart failure patients in behavioral intervention programs to promote self-management adherence.Method: This is a descriptive study using data generated from a randomizedcontrolled trial.Results: Eleven common barriers were identified such as the inability to perceivethe benefits of the study, the burden of managing multiple comorbidities, and the lack of transportation to appointments. Possible gateways to improve recruitment and retention include using recruiters from the local community and promoting provider engagement with research activities. Multiple challenges inhibited rural heart failure patients from participating in and completing the behavioral intervention study.Conclusion and implications: Anticipation of those barriers, and identifyingstrategies to remove those barriers, could contribute to an improvement in the rural patients’ participation and completion rates, leading to the generation of new evidence and better generalizability of the evidence.",
keywords = "Research recruitment, Research retention, Behavioral research, Heart failure, Self-management, Rural Health",
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AU - Do, Van

PY - 2010

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AB - Background: Heart failure is a major public health problem, and self-management is the primary approach to control the progression of heart failure. The low research participation rate among rural patients hinders the generation of new evidence for improving self-management in rural heart failure patients.Purpose: The purpose of this study is to identify the barriers and strategies inthe recruitment and retention of rural heart failure patients in behavioral intervention programs to promote self-management adherence.Method: This is a descriptive study using data generated from a randomizedcontrolled trial.Results: Eleven common barriers were identified such as the inability to perceivethe benefits of the study, the burden of managing multiple comorbidities, and the lack of transportation to appointments. Possible gateways to improve recruitment and retention include using recruiters from the local community and promoting provider engagement with research activities. Multiple challenges inhibited rural heart failure patients from participating in and completing the behavioral intervention study.Conclusion and implications: Anticipation of those barriers, and identifyingstrategies to remove those barriers, could contribute to an improvement in the rural patients’ participation and completion rates, leading to the generation of new evidence and better generalizability of the evidence.

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