Consensus statement on management of intersex disorders

I. A. Hughes, C. Houk, S. F. Ahmed, P. A. Lee

Research output: Contribution to journalArticle

305 Scopus citations

Abstract

The birth of an intersex child prompts a long-term management strategy that involves a myriad of professionals working with the family. There has been progress in diagnosis, surgical techniques, understanding psychosocial issues and in recognizing and accepting the place of patient advocacy. The Lawson Wilkins Paediatric Endocrine Society (LWPES) and the European Society for Paediatric Endocrinology (ESPE) considered it timely to review the management of intersex disorders from a broad perspective, to review data on longer term outcome and to formulate proposals for future studies. The methodology comprised establishing a number of working groups whose membership was drawn from 50 international experts in the field. The groups prepared prior written responses to a defined set of questions resulting from an evidence based review of the literature. At a subsequent gathering of participants, a framework for a consensus document was agreed. This paper constitutes its final form.

Original languageEnglish (US)
Pages (from-to)148-162
Number of pages15
JournalJournal of Pediatric Urology
Volume2
Issue number3
DOIs
StatePublished - Jun 1 2006
Externally publishedYes

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Keywords

  • Consensus
  • Diagnosis
  • Intersex
  • Management
  • Nomenclature
  • Outcome

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Urology

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