Resolving to go forward: the experience of Latino/Hispanic family caregivers.

Maryam Navaie-Waliser, Penny H. Feldman, D. A. Gould, C. Levine, A. N. Kuerbis, K. Donelan, A Abernethy, C Burns, J Wheeler, D Currow, James E Aikens, Kara Zivin, Ranak B Trivedi, John D Piette, Abdulkarim Yousef Aldehaim, Faisal F Alotaibi, Constance R Uphold, Stuti Dang, Lilas Ali, Barbro KreversNils Sjostrom, Ingela Skarsater, Sandrine Andrieu, Nicola Coley, Yves Rolland, Christelle Cantet, Catherine Arnaud, Sophie Guyonnet, Fati Nourhashemi, Alain Grand, Bruno Vellas, Samar M Aoun, Kathleen Deas, Denise Howting, Gabriel Lee, Yaacov G Bachner, Sara Carmel, E Bayen, C Papeix, P Pradat-Diehl, C Lubetzki, M E Joel, Erik Berglund, Per Lytsy, Ragnar Westerling, Connie Bottcher Berthelsen, Jimmie Kristensson, Rosanna M Bertrand, Lisa Fredman, Jane Saczynski, Patrick Bremer, Esther Cabrera, Helena Leino-Kilpi, Connie Lethin, Kai Saks, Caroline Sutcliffe, Maria Soto, Sandra M G Zwakhalen, Ansgar Wubker, Robert J Buchanan, Chunfeng Huang, Jean-Francois Buyck, Joel Ankri, Aline Dugravot, Sophie Bonnaud, Hermann Nabi, Mika Kivimaki, Archana Singh-Manoux, Billy A Caceres, Mayu O Frank, Jin Jun, Melissa T Martelly, Tina Sadarangani, Paloma Cesar de Sales, Sara Carletto, Martina Borghi, Diana Francone, Francesco Scavelli, Gabriella Bertino, Marco Cavallo, Simona Malucchi, Antonio Bertolotto, Francesco Oliva, Luca Ostacoli, Cesare Cavalera, Francesco Pagnini, Marco Rovaris, Laura Mendozzi, Luigi Pugnetti, Massimo Garegnani, Enrico Molinari, Amalavoyal V Chari, John Engberg, Kristin N Ray, Ateev Mehrotra, Feinian Chen, Christine A Mair, Luoman Bao, Yang Claire Yang, Sue-Hsien Chen, Jing-Long Huang, Kuo-Wei Yeh, Yi-Chen Yun-Fang Tsai, Carlos Chiatti, Joseph M Rimland, Franco Bonfranceschi, Filippo Masera, Silvia Bustacchini, Laura Cassetta, Carla Crespo, Susana Santos, Ana Tavares, Agata Salvador, Victoria Cristancho-Lacroix, Helene Kerherve, Jocelyne de Rotrou, Alexandra Rouquette, Gregory Legouverneur, Anne-Sophie Rigaud, Jeremy Wrobel, Inge Cantegreil-Kallen, Timothee Dub, Alexandra Rouquette, Anne-Sophie Rigaud, Rafael Del-Pino-Casado, Martin David Millan-Cobo, Pedro A Palomino-Moral, Antonio Frias-Osuna, Rachel Dias, Raquel Luiza Santos, Maria Fernanda Barroso de Sousa, Marcela Moreira Lima Nogueira, Bianca Torres, Tatiana Belfort, Marcia Cristina Nascimento Dourado, Elizabeth K Do, Steven A Cohen, Monique J Brown, Young Kyung Do, Edward C Norton, Sally C Stearns, Courtney Harold Van Houtven, Nimisha Doval, Eesha Sharma, Manu Agarwal, Adarsh Tripathi, Anil Nischal, Lorraine S Evangelista, Anna Stromberg, J Nicholas Dionne-Odom, Rachel Evans, Michael A Catapano, Dina Brooks, Roger S Goldstein, Monica Avendano, J I Farkas, C L Himes, Elizabeth Braungart Fauth, Elia E Femia, Steven H Zarit, Lisa Fredman, Jane A Cauley, Marc C Hochberg, Kristine E Ensrud, Gheorghe Doros, Suzanne Satterfield, Eleanor Simonsick, S Melinda Spencer, Hilsa N Ayonayon, Tamara B Harris, Gheorghe Doros, Kristine E Ensrud, Marc C Hochberg, Jane A Cauley, H Grau, E Graessel, H Berth, Nan Greenwood, Ferruccio Pelone, Anne-Marie Hassenkamp, Alisa Grigorovich, Samantha Forde, Dahlia Levinson, Marina Bastawrous, Angela M Cheung, Jill I Cameron, Kimberley J Haines, Linda Denehy, Elizabeth H Skinner, Stephen Warrillow, Sue Berney, Vanessa Halliday, Melanie Baker, Anne L Thomas, David Bowrey, Lina Hassoun, Christoph Herrmann-Lingen, Ulfert Hapke, Hannelore Neuhauser, Christa Scheidt-Nave, Thomas Meyer, Randy S Hebert, Qianyu Dang, Richard Schulz, Renske J Hoefman, Job van Exel, Werner B F Brouwer, Norissa J Honea, Ruthann Brintnall, Barbara Given, Paula R Sherwood, Deirdre B Colao, Susan C Somers, Laurel L Northouse, Stephanie A Hooker, Megan E Grigsby, Barbara Riegel, David B Bekelman, Willi Horner-Johnson, Konrad Dobbertin, Sheetal Kulkarni-Rajasekhara, Erin Beilstein-Wedel, Elena M Andresen, Barbara Horrell, Christine Stephens, Mary Breheny, Tanisha Jowsey, Ian McRae, James Gillespie, Michelle Banfield, Laurann Yen, Evanne Juratovac, Jaclene A Zauszniewski, Ronald Kelly, Lori Godin, Abby C King, G Brassington, Kellie Baumann, Paula O'Sullivan, Sara Wilcox, Cynthia Castro, Harold G Koenig, Bruce Nelson, Sally F Shaw, Salil Saxena, Harvey Jay Cohen, Monika Kogler, Monika Brandstatter, Gian Domenico Borasio, Veronika Fensterer, Helmut Kuchenhoff, Martin Johannes Fegg, Linda M Kronenberg, Peter J J Goossens, Jooske T van Busschbach, Theo van Achterberg, Wim van den Brink, Sherri L Lavela, Bella Etingen, Theresa Louise-Bender Pape, Kelsie Landers, Bella Etingen, Vytas P Karalius, Scott Miskevics, Ai Li Lee, Laura Strauss, Peggy Wittman, Barbara Jackson, Allie Carstens, Kwo-Chen C Lee, Wen-Cheng Chang, Wen-Chi Chou, Po-Jung Su, Chia-Hsun Hsieh, Jen-Shi Jenny Chen, Siew Tzuh Tang, Jia-Jean Yiin, Yann-Fen Chao, Tanguy Leroy, Emmanuelle Fournier, Nicolas Penel, Veronique Christophe, Peeranuch LeSeure, Supaporn Chongkham-Ang, Chunyu Li, Steven B Zeliadt, Ingrid J Hall, Judith Lee Smith, Donatus U Ekwueme, Carol M Moinpour, David F Penson, Ian M Thompson, Thomas E Keane, Scott D Ramsey, Hong Li, Qiuping P Li, Y W Mak, Alice Yuen Loke, Katharina Lindenbaum, Magdalena A Stroka, Roland Linder, Kristin Litzelman, Halcyon G Skinner, Ronald E Gangnon, F Javier Nieto, Kristen Malecki, Whitney P Witt, Brian Lovell, Mark A Wetherell, Kathleen T Lucke, Hernando Martinez, Thomas B Mendez, Lyda C Arevalo-Flechas, Line Lund, Lone Ross, Morten Aagaard Petersen, Mogens Groenvold, Jennifer G Lyons, Jane A Cauley, Lisa Fredman, Todd M Manini, James E Everhart, Kushang V Patel, Dale A Schoeller, Lisa H Colbert, Marjolein Visser, Frances Tylavsky, Douglas C Bauer, Bret H Goodpaster, Tamara B Harris, Silvia Martinez-Rodriguez, Nuria Ortiz-Marques, Ioseba Iraurgi, Maria Carrasco, Jose J Miguel, Judith T Matthews, Grace B Campbell, Amanda E Hunsaker, Julie Klinger, Laurel Person Mecca, Lu Hu, Sally Hostein, Jennifer H Lingler, Tamara McKenzie, Mary Elizabeth Quig, Tuula Tyry, Ruth Ann Marrie, Gary Cutter, Edward Shearin, Kamau Johnson, James Simsarian, Martin Nagl-Cupal, Maria Daniel, Martina Maria Koller, Hanna Mayer, Maryam Navaie-Waliser, Aubrey Spriggs, Penny H. Feldman, Ross E O'Hara, Jay G Hull, Kathleen D Lyons, Marie Bakitas, Mark T Hegel, Zhongze Li, Tim A Ahles, Donna M O'Malley, Kimberly A Randell, M Denise Dowd, Hsiang-Chu Pai, Yi-Chen Yun-Fang Tsai, J V Pasacreta, F Barg, I Nuamah, R McCorkle, Sara S Phillips, Daiva M Ragas, Laura S Tom, Nadia Hajjar, XinQi Dong, Melissa A Simon, John D Piette, Nicolle Marinec, Kathryn Janda, Emily Morgan, Karolina Schantz, Amparo Clara Aruquipa Yujra, Bismarck Pinto, Jose Marecelo Huayta Soto, Mary Janevic, James E Aikens, Dana Striplin, Nicolle Marinec, Jen-Shi Jenny Chen, Lynn A Gregory, Denise L Sumerlin, Angela M DeSantis, Carolyn Gibson, Ingrid Crause, Marylena Rouse, James E Aikens, Ranak B Trivedi, David C Aron, Lawrence Fisher, James E Aikens, Martin Pinquart, Silvia Sorensen, Gillian Prue, Olinda Santin, Sam Porter, Parminder Raina, Maureen O'Donnell, Peter Rosenbaum, Jamie Brehaut, Stephen D Walter, Dianne Russell, Marilyn Swinton, Bin Zhu, Ellen Wood, Lauren Roche DClinPsy, Karen Croot, Carolyn MacCann, Barbara Cramer, Janine Diehl-Schmid, Alyson Ross, Thiruppavai Sundaramurthi, Margaret Bevans, Andrea L Rosso, Brian K Lee, Marcia L Stefanick, Candyce H Kroenke, Laura H Coker, Nancy F Woods, Yvonne L Michael, N Ruiz-Robledillo, S De Andres-Garcia, J Perez-Blasco, E Gonzalez-Bono, L Moya-Albiol, Karen L Saban, Herbert L Mathews, Fred B Bryant, Timothy E O'Brien, Linda Witek Janusek, Paula R Sherwood, Holli A DeVon, Denise M Hynes, Adnaan Bin Sallim, Andrew Arjun Sayampanathan, Amit Cuttilan, Roger Chun-Man Ho, J Sansoni, K H Anderson, L M Varona, G Varela, Richard Schulz, S R Beach, Paula R Sherwood, Maureen Cwiklik, Heidi S Donovan, Sang Hong Shim, Hyo Shin Kang, Ji Hae Kim, Doh Kwan Kim, Shirley S Travis, William J McAuley, Jacek Dmochowski, Marie A Bernard, Hsueh-Fen S Kao, Ruth Greene, Rupa Sheth Valdez, Patricia Flatley Brennan, Ilse van Beusekom, Ferishta Bakhshi-Raiez, Nicolette F de Keizer, Dave A Dongelmans, Marike van der Schaaf, Jacqueline van der Lee, Ton J E M Bakker, Hugo J Duivenvoorden, Rose-Marie Droes, Elizabeth A Walker, Yue Cao, Philip A Edles, Joshua Acuna, Cassandra Sligh-Conway, James S Krause, Katharine Whittingham, Sarah Barnes, Clare Gardiner, P Wickham-Searl, Lori Wiener, Haven Battles, Sima Zadeh, Maryland Pao, Clare M Wohlgemuth, Heidi P Auerbach, Victoria A Parker, Ming-Hsiu Wu, Sheuan Lee, Hui-Yi Su, Hsiang-Chu Pai, K Robin Yabroff, Youngmee Kim, J L Yee, Richard Schulz, Lufei Young, Kathleen Healey, Mary Charlton, Kendra Schmid, Rana Zabad, Rebecca Wester, Donna M Zulman, John D Piette, Emily C Jenchura, Steven M Asch, Ann-Marie Rosland

Research output: Contribution to journalArticle

62 Scopus citations

Abstract

OBJECTIVES: Resistiveness to care (RTC) refers to behavior problems that co-occur during assistance with activities of daily living (ADL). RTC are considered challenging, but are mostly studied in institutions with implications for patients and formal caregivers. RTC is associated with agitation, but agitation is considered a separate construct. Detection of RTC may be left out of common assessments of persons with dementia in studies of informal caregiving (e.g. global assessments of dementia behavioral symptoms, standard assessments of ADL function). This study examines how RTC (frequency and caregivers' stress appraisals of RTC) is related to caregivers' well-being. METHOD: 234 caregivers of people with dementia reported care receivers' ADL impairment (eating, bathing, dressing), RTC frequency (of eating, bathing dressing), and their stress appraisals of these behaviors (RTC appraisals). Caregivers also self-reported their role overload, role captivity, and depressive symptoms. Hierarchical linear regression models included independent variables (demographics, ADL impairment, RTC frequency, RTC appraisals) with three separate dependent variables (overload, captivity, depressive symptoms). RESULTS: Two-thirds of informal caregivers reported RTC. Care recipients' ADL impairment was associated with caregiver outcomes, but only before RTC was entered into the models. RTC frequency significantly predicted caregivers' overload, captivity, and depression. RTC appraisals predicted overload and captivity. CONCLUSION: RTC is common in persons with dementia residing at home, and RTC has more negative association with informal caregivers' well-being than assistance with ADL. Adding RTC frequency and appraisal items to standard ADL measures may better estimate caregivers' needs and risk, and identify modifiable environmental features by assessing behavioral symptoms in context.
Original languageEnglish (US)
Pages (from-to)595-604
Number of pages10
JournalJournals of Gerontology - Series A Biological Sciences and Medical Sciences
Volume17
Issue number2
DOIs
StatePublished - Jun 2015

Keywords

  • 80 and over
  • Activities of Daily Living
  • Adaptation
  • Adolescent
  • Adult
  • Adult Children
  • African Americans
  • African Continental Ancestry Group
  • Age Distribution
  • Age Factors
  • Aged
  • Aging
  • Alzheimer Disease
  • Ambulatory
  • Analysis of Variance
  • Anger
  • Anxiety
  • Anxiety Disorders
  • Arousal
  • Artificial
  • Athletic Injuries
  • Attitude to Death
  • Attitude to Health
  • Attitudes
  • Australia
  • Austria
  • Basal Metabolism
  • Behavior
  • Behavioral Risk Factor Surveillance System
  • Behavioral Symptoms
  • Bereavement
  • Biomedical Research
  • Blood Glucose Self-Monitoring
  • Blood Pressure
  • Blood Pressure Monitoring
  • Bone
  • Canada
  • Cardiovascular Physiological Phenomena
  • Caregivers
  • Case Management
  • Case-Control Studies
  • Cerebral Palsy
  • Chi-Square Distribution
  • Child
  • Child Behavior Disorders
  • Child Development Disorders
  • China
  • Chronic Disease
  • Circadian Rhythm
  • Cluster Analysis
  • Cognition
  • Cognitive Therapy
  • Cohort Studies
  • Communication
  • Consumer Health Information
  • Continental Population Groups
  • Cooperative Behavior
  • Coronary Disease
  • Cost of Illness
  • Couples Therapy
  • Critical Illness
  • Cross-Sectional Studies
  • Cultural Characteristics
  • Data Collection
  • Dementia
  • Demography
  • Depression
  • Depressive Disorder
  • Diabetes Mellitus
  • Diet
  • Diffusion of Innovation
  • Disabled Children
  • Disabled Persons
  • Disease Management
  • Dyspnea
  • Econometric
  • Educational Status
  • Electronic Mail
  • Emotions
  • Empathy
  • Employment
  • Energy Metabolism
  • Ethnic Groups
  • European Continental Ancestry Group
  • Evidence-Based Medicine
  • Exercise
  • Exercise Test
  • Factor Analysis
  • Family
  • Family Characteristics
  • Family Conflict
  • Family Health
  • Feasibility Studies
  • Female
  • Follow-Up Studies
  • Foster Home Care
  • Fractures
  • Frail Elderly
  • Frontotemporal Dementia
  • Gait
  • Geriatric Assessment
  • Geriatrics
  • Germany
  • Hand Strength
  • Health Behavior
  • Health Information Systems
  • Health Knowledge
  • Health Priorities
  • Health Promotion
  • Health Services Needs and Demand
  • Health Services for the Aged
  • Health Status
  • Health Status Disparities
  • Health Status Indicators
  • Health Surveys
  • Heart Failure
  • Hispanic Americans
  • Home Care Services
  • Home Nursing
  • Housekeeping
  • Humans
  • Hydrocortisone
  • Incidence
  • Income
  • Information Seeking Behavior
  • Institutionalization
  • Intention to Treat Analysis
  • Intergenerational Relations
  • Internet
  • Interpersonal Relations
  • Interviews as Topic
  • Israel
  • Italy
  • Life Change Events
  • Life Style
  • Linear Models
  • Logistic Models
  • London
  • Longitudinal Studies
  • Love
  • Major
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  • Mental Competency
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  • Outcome Assessment (Health Care)
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  • Palliative Care
  • Parent-Child Relations
  • Parenting
  • Parents
  • Patient Advocacy
  • Patient Care
  • Patient Care Management
  • Patient-Centered Care
  • Patients
  • Pennsylvania
  • Perception
  • Personal Satisfaction
  • Personality Inventory
  • Pervasive
  • Physiologic
  • Physiological
  • Politics
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  • Power (Psychology)
  • Practice
  • Practice Guidelines as Topic
  • Prevalence
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  • Program Development
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  • Reproducibility of Results
  • Republic of Korea
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  • Residence Characteristics
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  • Risk
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  • Risk Factors
  • Role
  • Saliva
  • Self Administration
  • Self Care
  • Self Concept
  • Self Efficacy
  • Self Report
  • Self-Assessment
  • Severity of Illness Index
  • Sex Factors
  • Sickness Impact Profile
  • Sleep
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  • Social Isolation
  • Social Justice
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  • Tennessee
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  • Theoretical
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  • Type 2
  • United States
  • United States Department of Veterans Affairs
  • Utilization Review
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  • Weight Gain
  • Wisconsin
  • Women
  • Women's Health
  • Working
  • Workload
  • Young Adult
  • adverse effects
  • analysis
  • blood
  • chemistry
  • classification
  • complications
  • diagnosis
  • drug therapy
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  • education
  • epidemiology
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  • etiology
  • instrumentation
  • metabolism
  • methods
  • mortality
  • nursing
  • organization & administration
  • pathology
  • physiology
  • physiopathology
  • prevention & control
  • psychology
  • rehabilitation
  • standards
  • statistics & numerical data
  • therapy
  • utilization

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    Navaie-Waliser, M., Feldman, P. H., Gould, D. A., Levine, C., Kuerbis, A. N., Donelan, K., Abernethy, A., Burns, C., Wheeler, J., Currow, D., Aikens, J. E., Zivin, K., Trivedi, R. B., Piette, J. D., Aldehaim, A. Y., Alotaibi, F. F., Uphold, C. R., Dang, S., Ali, L., ... Rosland, A-M. (2015). Resolving to go forward: the experience of Latino/Hispanic family caregivers. Journals of Gerontology - Series A Biological Sciences and Medical Sciences, 17(2), 595-604. https://doi.org/10.1093/geront/gnt168