Sickle cell disease summit: From clinical and research disparity to action

Kathryn Hassell, Betty Sue Pace, Winfred Wang, Roshni Kulkarni, Naomi Luban, Cage S. Johnson, James Eckman, Peter Lane, William G. Woods

Research output: Contribution to journalArticle

22 Scopus citations

Abstract

The American Society of Pediatric Hematology/Oncology Sickle Cell Summit brought together a broad range of constituencies to Identify a unified approach to healthcare and research disparities for sickle cell disease. Recommendations Included the following; (1) speak with a unified voice representing all constituencies; (2) optimize access to care from knowledgeable health care providers and create a medical home for all individuals with the disease; (3) utilize population-based surveillance to measure outcomes; (4) develop overall approaches to basic, translational, clinical, and health services research; (5) enhance the community role in advocacy, education, service, and fundraising. Taskforces were identified to effect implementation.

Original languageEnglish (US)
Pages (from-to)39-45
Number of pages7
JournalAmerican Journal of Hematology
Volume84
Issue number1
DOIs
StatePublished - Jan 1 2009

ASJC Scopus subject areas

  • Hematology

Fingerprint Dive into the research topics of 'Sickle cell disease summit: From clinical and research disparity to action'. Together they form a unique fingerprint.

  • Cite this

    Hassell, K., Pace, B. S., Wang, W., Kulkarni, R., Luban, N., Johnson, C. S., Eckman, J., Lane, P., & Woods, W. G. (2009). Sickle cell disease summit: From clinical and research disparity to action. American Journal of Hematology, 84(1), 39-45. https://doi.org/10.1002/ajh.21315