Sickle cell disease summit: From clinical and research disparity to action

Kathryn Hassell, Betty Sue Pace, Winfred Wang, Roshni Kulkarni, Naomi Luban, Cage S. Johnson, James Eckman, Peter Lane, William G. Woods

Research output: Contribution to journalArticle

21 Citations (Scopus)

Abstract

The American Society of Pediatric Hematology/Oncology Sickle Cell Summit brought together a broad range of constituencies to Identify a unified approach to healthcare and research disparities for sickle cell disease. Recommendations Included the following; (1) speak with a unified voice representing all constituencies; (2) optimize access to care from knowledgeable health care providers and create a medical home for all individuals with the disease; (3) utilize population-based surveillance to measure outcomes; (4) develop overall approaches to basic, translational, clinical, and health services research; (5) enhance the community role in advocacy, education, service, and fundraising. Taskforces were identified to effect implementation.

Original languageEnglish (US)
Pages (from-to)39-45
Number of pages7
JournalAmerican Journal of Hematology
Volume84
Issue number1
DOIs
StatePublished - Jan 1 2009

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Health Services Research
Sickle Cell Anemia
Healthcare Disparities
Population Surveillance
Patient-Centered Care
Hematology
Research
Health Personnel
Outcome Assessment (Health Care)
Pediatrics
Education

ASJC Scopus subject areas

  • Hematology

Cite this

Hassell, K., Pace, B. S., Wang, W., Kulkarni, R., Luban, N., Johnson, C. S., ... Woods, W. G. (2009). Sickle cell disease summit: From clinical and research disparity to action. American Journal of Hematology, 84(1), 39-45. https://doi.org/10.1002/ajh.21315

Sickle cell disease summit : From clinical and research disparity to action. / Hassell, Kathryn; Pace, Betty Sue; Wang, Winfred; Kulkarni, Roshni; Luban, Naomi; Johnson, Cage S.; Eckman, James; Lane, Peter; Woods, William G.

In: American Journal of Hematology, Vol. 84, No. 1, 01.01.2009, p. 39-45.

Research output: Contribution to journalArticle

Hassell, K, Pace, BS, Wang, W, Kulkarni, R, Luban, N, Johnson, CS, Eckman, J, Lane, P & Woods, WG 2009, 'Sickle cell disease summit: From clinical and research disparity to action', American Journal of Hematology, vol. 84, no. 1, pp. 39-45. https://doi.org/10.1002/ajh.21315
Hassell, Kathryn ; Pace, Betty Sue ; Wang, Winfred ; Kulkarni, Roshni ; Luban, Naomi ; Johnson, Cage S. ; Eckman, James ; Lane, Peter ; Woods, William G. / Sickle cell disease summit : From clinical and research disparity to action. In: American Journal of Hematology. 2009 ; Vol. 84, No. 1. pp. 39-45.
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