Sickle cell disease summit

From clinical and research disparity to action

Kathryn Hassell, Betty Sue Pace, Winfred Wang, Roshni Kulkarni, Naomi Luban, Cage S. Johnson, James Eckman, Peter Lane, William G. Woods

Research output: Contribution to journalArticle

20 Citations (Scopus)

Abstract

The American Society of Pediatric Hematology/Oncology Sickle Cell Summit brought together a broad range of constituencies to Identify a unified approach to healthcare and research disparities for sickle cell disease. Recommendations Included the following; (1) speak with a unified voice representing all constituencies; (2) optimize access to care from knowledgeable health care providers and create a medical home for all individuals with the disease; (3) utilize population-based surveillance to measure outcomes; (4) develop overall approaches to basic, translational, clinical, and health services research; (5) enhance the community role in advocacy, education, service, and fundraising. Taskforces were identified to effect implementation.

Original languageEnglish (US)
Pages (from-to)39-45
Number of pages7
JournalAmerican Journal of Hematology
Volume84
Issue number1
DOIs
StatePublished - Jan 1 2009

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Health Services Research
Sickle Cell Anemia
Healthcare Disparities
Population Surveillance
Patient-Centered Care
Hematology
Research
Health Personnel
Outcome Assessment (Health Care)
Pediatrics
Education

ASJC Scopus subject areas

  • Hematology

Cite this

Hassell, K., Pace, B. S., Wang, W., Kulkarni, R., Luban, N., Johnson, C. S., ... Woods, W. G. (2009). Sickle cell disease summit: From clinical and research disparity to action. American Journal of Hematology, 84(1), 39-45. https://doi.org/10.1002/ajh.21315

Sickle cell disease summit : From clinical and research disparity to action. / Hassell, Kathryn; Pace, Betty Sue; Wang, Winfred; Kulkarni, Roshni; Luban, Naomi; Johnson, Cage S.; Eckman, James; Lane, Peter; Woods, William G.

In: American Journal of Hematology, Vol. 84, No. 1, 01.01.2009, p. 39-45.

Research output: Contribution to journalArticle

Hassell, K, Pace, BS, Wang, W, Kulkarni, R, Luban, N, Johnson, CS, Eckman, J, Lane, P & Woods, WG 2009, 'Sickle cell disease summit: From clinical and research disparity to action', American Journal of Hematology, vol. 84, no. 1, pp. 39-45. https://doi.org/10.1002/ajh.21315
Hassell, Kathryn ; Pace, Betty Sue ; Wang, Winfred ; Kulkarni, Roshni ; Luban, Naomi ; Johnson, Cage S. ; Eckman, James ; Lane, Peter ; Woods, William G. / Sickle cell disease summit : From clinical and research disparity to action. In: American Journal of Hematology. 2009 ; Vol. 84, No. 1. pp. 39-45.
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