Sickle cell disease summit: From clinical and research disparity to action

Kathryn Hassell; Betty Sue Pace; Winfred Wang; Roshni Kulkarni; Naomi Luban; Cage S. Johnson; James Eckman; Peter Lane; William G. Woods

doi:10.1002/ajh.21315

Sickle cell disease summit: From clinical and research disparity to action

Kathryn Hassell, Betty Sue Pace, Winfred Wang, Roshni Kulkarni, Naomi Luban, Cage S. Johnson, James Eckman, Peter Lane, William G. Woods

Pediatric Hematology/Oncology

Research output: Contribution to journal › Article › peer-review

26 Scopus citations

Abstract

The American Society of Pediatric Hematology/Oncology Sickle Cell Summit brought together a broad range of constituencies to Identify a unified approach to healthcare and research disparities for sickle cell disease. Recommendations Included the following; (1) speak with a unified voice representing all constituencies; (2) optimize access to care from knowledgeable health care providers and create a medical home for all individuals with the disease; (3) utilize population-based surveillance to measure outcomes; (4) develop overall approaches to basic, translational, clinical, and health services research; (5) enhance the community role in advocacy, education, service, and fundraising. Taskforces were identified to effect implementation.

Original language	English (US)
Pages (from-to)	39-45
Number of pages	7
Journal	American Journal of Hematology
Volume	84
Issue number	1
DOIs	https://doi.org/10.1002/ajh.21315
State	Published - Jan 2009

ASJC Scopus subject areas

Hematology

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AU - Lane, Peter

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Sickle cell disease summit: From clinical and research disparity to action

Abstract

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