@article{f4fc13b5349c4357aabf59ef6a980575,
title = "The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus",
abstract = "Background: The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines. Method: On 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: (i) patient and system centred outcomes, (ii) health benefits, iii) measurement, (iv) prescription, (v) clinical considerations, and (vi) future directions. The consensus was achieved by a stepwise process, involving: (i) written evidence-based synopses; (ii) peer critique of synopses; (iii) oral presentation to consensus group and peer challenge of revised synopses; and (iv) anonymous voting on final proposed synopses for adoption to the consensus statement. Results: The final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements. Conclusion: This consensus can be used to support health promotion by relevant stakeholders for people with CF.",
keywords = "clinical practice, health, lifestyle, respiratory disease",
author = "{on behalf of the Youth Activity Unlimited – A Strategic Research Centre of the UK Cystic Fibrosis Trust} and Williams, {Craig A.} and Barker, {Alan R.} and Sarah Denford and {van Beurden}, {Samantha B.} and Bianchim, {Mayara S.} and Caterini, {Jessica E.} and Cox, {Narelle S.} and Mackintosh, {Kelly A.} and McNarry, {Melitta A.} and Sarah Rand and Schneiderman, {Jane E.} and Wells, {Greg D.} and Peter Anderson and Daniel Beever and Z. Beverley and Ronan Buckley and Brenda Button and Causer, {Adam J.} and M{\'a}ire Curran and Dwyer, {Tiffany J.} and Warren Gordon and Mathieu Gruet and Harris, {Ryan A.} and Elpis Hatziagorou and Hulzebos, {H. J.} and Asterios Kampouras and Lisa Morrison and C{\'a}mara, {Marietta N.} and Reilly, {Clare M.} and Abbey Sawyer and Saynor, {Zoe L.} and James Shelley and Grace Spencer and Stanford, {Gemma E.} and Urquhart, {Don S.} and Rachel Young and Tomlinson, {Owen W.}",
note = "Funding Information: This work is part of the {\textquoteleft}Youth Activity Unlimited{\textquoteright} Strategic Research Centre, funded by the Cystic Fibrosis Trust (SRC#008). The funder had no role in the design of the consensus, literature synthesis nor drafting of preliminary statements. Jacqueline Ali, as a representative of the Cystic Fibrosis Trust, participated in the 2-day meeting, but did not have voting rights. Publisher Copyright: {\textcopyright} The Author(s) 2022.",
year = "2022",
month = aug,
doi = "10.1177/14799731221121670",
language = "English (US)",
volume = "19",
journal = "Chronic Respiratory Disease",
issn = "1479-9723",
publisher = "SAGE Publications Ltd",
}