TY - JOUR
T1 - A Culturally Sensitive Web-based Intervention to Improve Living Donor Kidney Transplant Among African Americans
AU - Patzer, Rachel E.
AU - McPherson, Laura
AU - Redmond, Nakeva
AU - DuBay, Derek
AU - Zayas Montalvo, Carlos F
AU - Hartmann, Erica
AU - Mulloy, Laura
AU - Perryman, Jennie
AU - Pastan, Stephen
AU - Arriola, Kimberly Jacob
N1 - Funding Information:
This study is supported by funding from the National Institute of Diabetes and Digestive and Kidney Diseases ( R01DK114891 ). The authors also acknowledge Rich Mutell (Apex Health Innovations) for the creation of the T-REX application.
Publisher Copyright:
© 2019 International Society of Nephrology
PY - 2019/9
Y1 - 2019/9
N2 - Introduction: There are pervasive racial disparities in access to living donor kidney transplantation, which for most patients with end-stage renal disease (ESRD) represents the optimal treatment. We previously developed a theory-driven, culturally sensitive intervention for African American (AA) patients with kidney disease called Living ACTS (About Choices in Transplantation and Sharing) as a DVD and booklet, and found this intervention was effective in increasing living donor transplant knowledge. However, it is unknown whether modifying this intervention for a Web-based environment is effective at increasing access to living donor transplantation. Methods: We describe the Web-based Living ACTS study, a multicenter, randomized controlled study designed to test the effectiveness of a revised Living ACTS intervention in 4 transplant centers in the southeastern United States. The intervention consists of a Web site with 5 modules: Introduction, Benefits and Risks, The Kidney Transplant Process, Identifying a Potential Kidney Donor, and ACT Now (which encourages communication with friends and family about transplantation). Results: This study will enroll approximately 800 patients from the 4 transplant centers. The primary outcome is the percentage of patients with at least 1 inquiry from a potential living donor among patients who receive Living ACTS as compared with those who receive a control Web site. Conclusion: The results from this study are expected to demonstrate the effectiveness of an intervention designed to increase access to living donor transplantation among AA individuals. If successful, the Web-based intervention could be disseminated across the >250 transplant centers in the United States to improve equity in living donor kidney transplantation.
AB - Introduction: There are pervasive racial disparities in access to living donor kidney transplantation, which for most patients with end-stage renal disease (ESRD) represents the optimal treatment. We previously developed a theory-driven, culturally sensitive intervention for African American (AA) patients with kidney disease called Living ACTS (About Choices in Transplantation and Sharing) as a DVD and booklet, and found this intervention was effective in increasing living donor transplant knowledge. However, it is unknown whether modifying this intervention for a Web-based environment is effective at increasing access to living donor transplantation. Methods: We describe the Web-based Living ACTS study, a multicenter, randomized controlled study designed to test the effectiveness of a revised Living ACTS intervention in 4 transplant centers in the southeastern United States. The intervention consists of a Web site with 5 modules: Introduction, Benefits and Risks, The Kidney Transplant Process, Identifying a Potential Kidney Donor, and ACT Now (which encourages communication with friends and family about transplantation). Results: This study will enroll approximately 800 patients from the 4 transplant centers. The primary outcome is the percentage of patients with at least 1 inquiry from a potential living donor among patients who receive Living ACTS as compared with those who receive a control Web site. Conclusion: The results from this study are expected to demonstrate the effectiveness of an intervention designed to increase access to living donor transplantation among AA individuals. If successful, the Web-based intervention could be disseminated across the >250 transplant centers in the United States to improve equity in living donor kidney transplantation.
KW - education
KW - intervention
KW - kidney transplant
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U2 - 10.1016/j.ekir.2019.05.771
DO - 10.1016/j.ekir.2019.05.771
M3 - Article
AN - SCOPUS:85069911929
SN - 2468-0249
VL - 4
SP - 1285
EP - 1295
JO - Kidney International Reports
JF - Kidney International Reports
IS - 9
ER -