Establishment of an internationally agreed minimum data set for acute telestroke

Dominique A. Cadilhac, Kathleen L. Bagot, Bart M. Demaerschalk, Gordian Hubert, Lee Schwamm, Caroline L. Watkins, Catherine Elizabeth Lightbody, Joosup Kim, Michelle Vu, Nancy Pompeani, Jeffrey Switzer, Juanita Caudill, Juan Estrada, Anand Viswanathan, Nikolai Hubert, Robin Ohannessian, David Hargroves, Nicholas Roberts, Timothy Ingall, David C. HessAnnemarei Ranta, Vasantha Padma, Christopher F. Bladin

Research output: Contribution to journalArticle

2 Scopus citations

Abstract

Introduction: Globally, the use of telestroke programmes for acute care is expanding. Currently, a standardised set of variables for enabling reliable international comparisons of telestroke programmes does not exist. The aim of the study was to establish a consensus-based, minimum dataset for acute telestroke to enable the reliable comparison of programmes, clinical management and patient outcomes. Methods: An initial scoping review of variables was conducted, supplemented by reaching out to colleagues leading some of these programmes in different countries. An international expert panel of clinicians, researchers and managers (n = 20) from the Australasia Pacific region, USA, UK and Europe was convened. A modified-Delphi technique was used to achieve consensus via online questionnaires, teleconferences and email. Results: Overall, 533 variables were initially identified and harmonised into 159 variables for the expert panel to review. The final dataset included 110 variables covering three themes (service configuration, consultations, patient information) and 12 categories: (1) details about telestroke network/programme (n = 12), (2) details about initiating hospital (n = 10), (3) telestroke consultation (n = 17), (4) patient characteristics (n = 7), (5) presentation to hospital (n = 5), (6) general clinical care within first 24 hours (n = 10), (7) thrombolysis treatment (n = 10), (8) endovascular treatment (n = 13), (9) neurosurgery treatment (n = 8), (10) processes of care beyond 24 hours (n = 7), (11) discharge information (n = 5), (12) post-discharge and follow-up data (n = 6). Discussion: The acute telestroke minimum dataset provides a recommended set of variables to systematically evaluate acute telestroke programmes in different countries. Adoption is recommended for new and existing services.

Original languageEnglish (US)
JournalJournal of Telemedicine and Telecare
DOIs
StateAccepted/In press - Jan 1 2020

Keywords

  • Stroke
  • clinical care processes
  • minimum data set
  • patient outcomes
  • telemedicine
  • telestroke

ASJC Scopus subject areas

  • Health Informatics

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    Cadilhac, D. A., Bagot, K. L., Demaerschalk, B. M., Hubert, G., Schwamm, L., Watkins, C. L., Lightbody, C. E., Kim, J., Vu, M., Pompeani, N., Switzer, J., Caudill, J., Estrada, J., Viswanathan, A., Hubert, N., Ohannessian, R., Hargroves, D., Roberts, N., Ingall, T., ... Bladin, C. F. (Accepted/In press). Establishment of an internationally agreed minimum data set for acute telestroke. Journal of Telemedicine and Telecare. https://doi.org/10.1177/1357633X19899262